I thought I would take a break from all the boyfriend QT to post an update on my healing process.
All in all, I am doing much better than the last surgery. I know that this surgery was more intense; however, last time I was cut in 5 locations rather than 2. Last time I had to have a little butt push to get off the couch. This time I am moving around a little easier. I definitely notice an overall lack of strength. By the time I take a shower, I need a 2 hour nap. Showering is probably the most painful thing I have done so far. Washing my hair is pretty much a nightmare since I have trouble lifting my left arm that high. And having someone wash it for me? Well, that would be lovely...except for the fact that I am super sensitive on the right side of my head and face. My ear is very painful! Because of the nerves that were cut, there was quite a bit of damage. Some of the numbness and pain will go away with time. I sure hope the pain in my ear vanishes...soon...I am an earring whore! I will never feel pretty again if I can't wear earrings! ;-)
The rash is finally starting to heal. It is still bothering me but nothing like it was. And my little bullet holes, as I like to call them, are healing. Hopefully with the help of this Fluocinonide cream I will get rid of the rash soon. I am praying it does not leave a scar...You can still see where I had the rash around my arms following the last surgery.
So, what's next? Minus resting! I have an appointment in New York to see The Wizard, my oncologist, on April 22nd. He wanted to give me a few weeks before we start anything else. The appointment is to discuss the clinical trials that I am eligible for. If I decide to do the ipi trial (Which I will) it is possible I can receive the treatment in Charlotte, NC. I see the pros and cons of trading locations. At Sloan Kettering, I am already familiar with the area and the doctors. I like the center and the doctors. However, it is VERY expensive. For the week I was in New York, it was over $2,000 just for the hotel room. I have to do some research and talk things through with my Mom...She is the one who has been next to my side almost 24/7. The decision is honestly up to her.
Well, I am pooped. I know that with time and rest my energy will return. I have to keep reminding myself it has only been a little over a week since my surgery...it is OK to be lazy.
When else will there be a time when it is acceptable to be lazy?!
Happy Saturday, folks. Do something fun!
Glad to hear you are doing better and keep taking those naps!
ReplyDeleteDid you ask if the clinical trial runners would pay for travel expenses? The trial I am on are paying for some folks to come to Phx to receive the treatment. Just a thought!