Thursday, November 15, 2012

Walking For A Cure


2011 AIM at Melanoma Walk in Charlotte, NC

It's time, friends.

Tomorrow I will head to Charlotte, NC to join my mom & step dad
and many of my melanoma friends
to participate in this great event. 
To those of you who donated, THANK YOU. 
Your money supports a great cause.

It has been a year and 9 months of shared fears,
constant encouragement, 
and friendly cyber friendship.

Tomorrow and Saturday I will meet many of these friends
for the very first time.
I. Can't. Wait.

Before I go to bed, I want to thank each and every one of you
who reached out to me over the last few days. 
Your support, advice, and love means so much to me.
It's an understatement to say
that I have the best support system ever.

Thank you.

All my love,

Chelsea
 

Tuesday, November 13, 2012

Unfriend

"Calling somebody else fat won't make you any skinnier. 
Calling someone stupid doesn't make you any smarter."

I have a love/hate relationship with my high school memories. Sure, I loved when I had lunch period with my two best friends and we got to catch up on gossip. I loved getting dressed up for prom and having my best guy friend pick me up on my doorstep. However,  I could have done without the cheerleader putting gum in my hair all because her ex-boyfriend asked me to prom... And I'm pretty positive I wouldn't have minded my picture remaining on the wall since I worked hard for that award. High school was brutal which is saying a lot because I wasn't unpopular. Kids are mean. Even I had my moments I am most definitely not proud of.


"There are a million things you have to do to get through each day. High school has things that can trip you up, ruin you, people say one thing and mean another, and you have to know all the rules, you have to know what you can and can't do.” 

I'm here to warn ya, the cancer network isn't all that different than high school. There are high emotions, overly sensitive souls, rules you must silently follow, and sometimes there are games you have to play. I'm not saying it's a bad thing, it's just a part of it. The majority of the people I have encountered have been wonderful, truly inspiring people. These honest people who make up the majority of the group are the ones who need you as much as you need them, who sincerely cheer you on from their computer monitors, who talk and listen. 

When discussing the amazing people we meet in the cancer network, Hillary Fogelson explains it best in Pale Girl Speaks, "It may seem morbid that I like going and hearing patients' stories. But as horribly shocking and painfully sad as most of the stories are, I still enjoy hearing people talk about their illness: their cancer, their side effects, their recovery, and sometimes even their death. I'm meeting people in the most vulnerable time of their lives. Many of them are confronting their own mortality--a few are still trying to accept their illness, some are struggling to make peace with it, others are looking to make peace with themselves, but all of them are willing to share. Share all of it with me. And it's truly amazing. It's inspiring. These people! I can't believe these goddamned sick people! I am constantly amazed by their strength. They are so strong, so powerful. They've dealt with more pain and hurt and fear than they probably ever imagined they would" (285-286).

Then there's the other side. You meet the people you are unsure of, the people who make you feel like the treatment you are doing isn't just right, the folks who don't bring you down with their cancer, but instead, with their attitude.


And that, my friends, is the topic of tonight's post: Attitudes.

I feel like I have been very open with the world about my experience with melanoma. In return, I have been adored and criticized. When I am happy and enjoying my life outside of melanoma, I share it. When I am feeling bitchy and just freaking ticked off at the things that are happening, I blog about it. When a stranger questions my scars I confide in all of you about the tears that were shed secretly in my car. When a fellow melanoma warrior tells me I don't have brain cells because I used the tanning bed, I take to this very public blog and write about it with hopes that you all have advice on how to handle the situation. I tell you things about my personal relationship during its darkest hour simply because I don't want to sugarcoat things. Shit is hard sometimes and I made a promise in the very beginning to be as honest as I possibly could be. Sometimes you like what I have to say, sometimes you don't. It's something I knew would happen when this blog started becoming a bit more popular.




Blogging about my life and my cancer isn't the only thing I try to do. I make a huge effort to support fellow cancer patients. I may not respond to every status update, it may take me a few days to get back to your email, but when you all take the time to email me with your deepest fears and concerns, I try my hardest to address every single one of you. I try to be available, honest, and respectful of you as I wish for you to be of me.





With that being said, I will not support negativity. Ever.

In the last 2 months I have witnessed an increase of bullying within our loving melanoma community. A group where I used to frequent often to check on my "Mole Mates" and to ask my own questions is now a place I am no longer a part of. I have deleted fellow melanoma warriors from my personal Facebook page due to negativity and unfriendliness.  I hate that I feel like I need to remind people of this, but cancer doesn't give you an excuse to act like an asshole.

Because of the decisions I made to unfriend certain folks, and because of my opinion of Bruce Jenner, I have been accused of being "two-faced" and not supportive of fellow melanoma warriors. This opinion has lead people to send letters to a certain Foundation I hold dear to my heart. Apparently they do not believe I am a good role model because of my two-faces and the lack of support I give to fellow warriors.

I made a personal decision to remove myself from negativity. It was a decision I made on my own. While I hate that these people have to battle melanoma, I will not excuse them from their poor behavior nor will I tolerate it. Because of this decision, 3 women have decided to verbally attack me via letters to THE Foundation that means a lot to me.

I am not OK with this.

These women want me to be more real than I have been? Here it is:

Cyber bullying is not OK and I refuse to tolerate it. If that means I'm an unsupportive 2-faced diva, so be it. My decision remains the same. I'm keeping the negativity out.





Monday, November 12, 2012

A Punch In the Stomach

While browsing through some of my old boxes of books last night I found an item that I used to carry around in my purse. I knew that if I wanted a spontaneous session, my eyes would be safe. I would have lotion in my car, these babies in my purse, and I was good to go.


Tanning goggles.



 I felt like I had been punched in the stomach. No lie. I thought I was going to puke while standing there in my sister's basement holding the dusty eye protection. The worst part was remembering how sometimes I would go without the eye protection for a few minutes to avoid tan lines. Man, I made some stupid decisions and I don't have a person to blame but myself.


After walking upstairs I sat down and started browsing through one of the books I found. Flipping through the pages, I read this passage: 
        
"Something really bad happened to me, something that changed my life in ways that,
if I had a choice, it would never have been changed at all. 
And what I learned from it is what, today, sometimes seems to be the hardest lesson of all.

I learned to love the journey, not the destination. I learned that this is not a dress rehearsal,
and that today is the only guarantee you get.

I learned to look at all the good in the world and to try to give some of it back, because
I believed in it completely and utterly. And I tried to do that, in part, by telling others what I had learned, even though so many people may have thought I sounded like a Pollyanna."
-Anna Quindlen, A Short Guide to a Happy Life


I needed to read that passage at that very moment. It may have taken a horrible thing happening to me before I started living life the way I am meant to live, and that includes sharing my story with people around the world, but I really am happy. No amount of regrets will change my situation which is exactly why I can't allow myself to get caught up in them.

Oh, and you would think I would toss those goggles in the trash, right?

Nope. They'll go with me to the next speaking event, hopefully located in a high school!


Sunday, November 11, 2012

Happy Veterans Day!

I want to take time to thank our many Veterans, 
past and present, 
who have made the most selfless decision to serve our country. 

I am in awe of you.

Thank you.



*Tomorrow I plan on blogging about what item I found while looking through my old books tonight. I felt like something had reached out and punched me in the gut...

Sweet dreams, friends. 


Wednesday, November 7, 2012

Overdue Check-Up

Are you guys as burnt out on political talk as I am? Well, don't worry, I'm not touching on politics tonight. I have new results to share with you tonight...

Due to the craziness of the last few months: new job, trips to New York, and finding the house, I let my 3 month appointments with my dermatologist slip by. Don't worry--I saw other doctors who gave me the glance over, but I knew it was time to get a full body exam when my beloved oncologist, The Wizard, questioned me about it in October. I headed into the office for my 7:10 appointment on Friday with a smile on my face and a magazine in my hand. I wanted to give him a copy of The Skin Cancer Foundation's Journal that I was so honored to be a part of. While waiting for Dr. Cool Guy (I call him that because he's totally unlike other doctors. He's laid back and just someone you want to be friends with) to enter the room, I heard him talking to the nurse: "This is her." Nurse: "Who? The one you always talk about?" And what do you know, my dermatologist walked into my exam room holding his own copy of The Skin Cancer Foundation's Journal! 

(You can read or buy a copy of the Journal here.)



After we played catch-up, we got down to business. I had one mole in particular that made me nervous. Not only did it resemble the mole that eventually turned into melanoma, it also caught the attention of my other doctors. While the dermatologist comforted me that he didn't think it was anything too serious, he said he trusts my instincts. Guess what? It was a dysplastic nevus.  I knew it needed to get off my body!

 

Luckily he got clear margins!

Don't think I escaped with just one battle wound though! Dr. Cool Guy was looking at my back and hesitated for a while, so I knew he saw something he didn't really like. He asked, "Do you mind if I take this?" Of course I said, "Take it." The watch and wait approach doesn't work for us...

I'm totally allergic to the tape they use...Must remember that next time!

That mole also was mildly dysplastic.

My dermatologist is married to a two time melanoma survivor which is another reason why I appreciate him. Ever since he told me that horrible news, he has done everything in his power to help me. We don't shake hands when he walks in. We hug. I respect him, he respects me. No lie, there was a time when I was mad at him. I was mad because I felt like I wasn't prepared for the horrible news he gave me. But how could I have been? We--like so many other melanoma patients--didn't think that mole was melanoma. And let's be real. I wasn't mad at him. I was mad at the shitty situation.

Back to his wife, when I mentioned on Facebook that he had removed two more suspicious looking areas from my back, she wrote,"I'm glad he doesn't trust a mole when it comes to you." She's right, he doesn't trust moles. He will quickly point out what he doesn't like and slice it off. Sure, it may hurt a little, it may cost a lot, but the peace of mind I receive after I get the phone call from his nurse is priceless. 

Let this be your reminder to follow-up with your dermatologist. If you don't like the way something looks, ask for it to be removed! Sometimes you gotta bite the bullet and be your own advocate.

PS--I have now had 4 dysplastic nevi removed since I was diagnosed with melanoma. Have you all had them removed too? Just curious! 

 



 

Monday, November 5, 2012

Change of Heart

Remember my rant about Bruce Jenner and his speaking role at a tanning convention? If you have forgotten, click here.

It appears as though Bruce has had a change of heart. 


He is now participating in a golfing tournament for the Melanoma Research Foundation.

While I am happy he's supporting a worthwhile cause, I have to wonder what made him decide to participate?

Does he not realize that tanning is linked to the increase in melanoma?Does he not care one way or another?Is it just a paycheck? Am I the only one who questions his mixed signals?

Whatever, Bruce, I'm glad you aren't a skin cancer survivor speaking at another darn tanning convention...

Wednesday, October 31, 2012

Trick Or Treat!

Happy Halloween!

My boyfriend's kiddo, G, before trick or treating!

Look what else I saw tonight... 

Someone else in Roanoke supporting Melanoma!

It isn't every day you see one of those ribbons!

Hope you got lots of candy!